Dear all,

We are a young startup working towards solving data access problems for patients in the US.

We think that patients get treated very poorly in the current ecosystem, and we want to change it.

As of now, we have built an app that lets you access your healthcare data, and further provides relevant insights.

I want to discuss the problem with you to learn and build better. Not sure if this is the right place to do it, but if you have ever sought access to your healthcare data, please let me know. I would love to learn from you.

Warmly,

Carrkarot

  • FullSend510@alien.topB
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    10 months ago

    I move a lot and change doctors a lot. I have a long history of medical data I have no access to and never will as I don’t care to look back and figure out who did what and when. Does your app find all of that for me or does it only have what I put in there?

  • jawabdey@alien.topB
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    10 months ago

    Just being honest here. First, I wouldn’t trust a startup with my health data. Data sharing and being hacked would be the top concerns. Maybe others may not feel that way.

    Moving beyond that, how would having my data in one place help me get treated better? Let’s say someone has all their data. How does that help get earlier doctor’s appointments? How does that help with prior auth?

    If you aren’t in the US, I would pivot very quickly. There’s a ton of regulations and red tape and chances of success are fairly slim.

    Source: Someone who has worked at multiple healthcare tech companies. Also, I’m healthy, but I have a loved one who isn’t cared for very well. As a data professional, and knowing patient pain points, I can tell you that access to personal health data is not the problem.

  • TheBrownBaron@alien.topB
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    10 months ago

    Access to data isn’t how we get better care, you can ask any org who is using Epic or Cerner for just damn near everything they have on you. See “MyChart” and Epiccare Connect for example

    It having the money and time to follow thru 🤷

  • feudalle@alien.topB
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    10 months ago

    In the US most doctors have portals of some sort. You login, you can see all your test results, communications with doctors on your team, prescriptions, and I can even bulk download it. What are you adding to the conversation?

  • atcg0101@alien.topB
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    10 months ago
    1. Who do you envision paying for your product? The majority of costs for patients is paid for/expected to be paid for by insurance, not the consumer themselves.

    2. How does your offering differentiate from Apple Health? They allow you to aggregate your medical information with your digital health data at no additional cost to the user. They have arguably the best privacy features for users.

    3. How will you support the various healthcare providers across our fractured healthcare system? Are you working on integrations via an aggregator like HumanAPI? Or are you building bespoke integrations directly with providers?

    4. How will you get users? Who will encourage your users to download and use your app?

    5. The Healthcare Provider ecosystem has been going through a massive consolidation phase over the past few years. Each of them typically offer the ability to not only collect your records from other centers (combination of technology and Human Resources) but also typically leverage Epic or Cerner’s patient facing portals that aggregates all of their record information alongside appointment bookings and communications with physicians.

    6. Have you considered focusing on a singular healthcare system, within a specific geographic region, targeting a very specific demographic of patients that often need to aggregate their records across multiple providers?

    One thing I did ultimately realize is that since the US healthcare system is predominately for-profit it often causes the majority of systems to prioritize cost-savings or revenue generation over the ability to make patients healthier. You’ll need to be able to prove all three if you wanted to sell to providers.

  • Background-Term2759@alien.topB
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    10 months ago

    As a doctor, if you can make an app that summarizes hospital course discharge summaries and could integrate with emrs you would have an opp. Right now, everyone reads each note then handcrafts the didcharge note. This is a 1000-2000 word document that we make for each patient instead of doing patient care

  • Lauren_Penrose@alien.topB
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    10 months ago

    I live in a rural area and the hospitals all use outdated software that doesn’t integrate. Although rural areas have less people, if you add them all together they are the ones desperate for technology, there’s a lot of rural areas, and they don’t tend to move around much so obtaining medical history might include only 1-2 sources but be a rare service out here.